Nager Syndrome gene
4:05
Nager Syndrome gene
30.6K viewsMay 11, 2012
YouTubeAlberta Health Services
Kierra is diagnosed with a rare genetic condition known as Nager syndrome. She hopes that others understand that each person in the world is a human worthy of acceptance. | Special Books by Special Kids
6:55
Kierra is diagnosed with a rare genetic condition known as Nager syndrome. She hopes that others understand that each person in the world is a human worthy of acceptance. | Special Books by Special Kids
373.5K viewsJan 21, 2021
FacebookSpecial Books by Special Kids
Ashley is diagnosed with Nager syndrome. She hopes to one day start a family with a man who accepts her fully. Watch this full interview at youtu.be/bkuZZxYt588. | Special Books by Special Kids
2:47
Ashley is diagnosed with Nager syndrome. She hopes to one day start a family with a man who accepts her fully. Watch this full interview at youtu.be/bkuZZxYt588. | Special Books by Special Kids
3.3M viewsAug 3, 2018
FacebookSpecial Books by Special Kids
Ashley's Life with Nager Syndrome
10:12
Ashley's Life with Nager Syndrome
1.1M viewsAug 2, 2018
YouTubeSpecial Books by Special Kids
My Child's Rare Journey: Living with Nager Syndrome & Her Fight to Thrive
1:54
My Child's Rare Journey: Living with Nager Syndrome & Her Fight to Thrive
1.4K views5 months ago
YouTubeStory Frame
The rare disease that affects the development of the face - Nager syndrome
0:48
The rare disease that affects the development of the face - Nager syndrome
7K viewsJan 18, 2025
YouTubeDentalk!
Ashley is diagnosed with Nager syndrome, a rare genetic condition. She feels blessed for many reasons, including waking up each day surrounded by friends and family who love her. | Special Books by Special Kids
7:50
Ashley is diagnosed with Nager syndrome, a rare genetic condition. She feels blessed for many reasons, including waking up each day surrounded by friends and family who love her. | Special Books by Special Kids
630.7K viewsFeb 18, 2021
FacebookSpecial Books by Special Kids
3:35
All about Nager Syndrome
805 viewsApr 25, 2024
YouTubeKierra Pointer
4:45
le syndrome de Nager
3.2K viewsMar 14, 2021
YouTubeXavier
4:54
Jeff's Journey (Nager Syndrome) #storytime #storytrue #trending #foryou #fyp
Nov 18, 2023
TikToktruestories.doc
8:34
Romane raconte sa vie avec le syndrome de Nager
7 months ago
MSNdoctissimo
1:00
Understanding Nager Syndrome: 5 Key Facts Revealed
74.2K viewsAug 28, 2022
TikTokfindyourrare
10:04
Jeff's Journey (Nager Syndrome)
7.6M viewsMay 16, 2019
YouTubeSpecial Books by Special Kids
1:01
Cette petite fille est défigurée par une maladie extrêmement rare appelée le syndrome de Nager Encore appelée dysostose acro-faciale de Nager (NAFD), c’est une malformation congénitale, liée à une mutation génétique associant ainsi de graves anomalies de la face et des membres. #malformationcongenitale #bodybizarre #maladiegenetiquerare #maladierare #raredisease #cotedivoire #nigeria #niger #africa #gabon #togo #mali #senegal #cameroun #viral #morocco #algeria #tunisia #nagersyndrome #russia #wa
15.6K viewsJun 15, 2023
TikToksweetgirlsweeti2
2:14
Jeff's Dream (Living with Nager Syndrome)
7.8M viewsApr 6, 2017
YouTubeSpecial Books by Special Kids
3:10
Crigler-Najjar syndrome | Causes | Type | Diagnosis | treatment |
3.7K viewsApr 19, 2022
YouTubeMedico Learning
12:16
Jeff is diagnosed with a rare disability known as Nager Miller syndrome. We first met while I was visiting a school for disabled children in 2017. Jeff, who uses assistive technology to communicate, was a volunteer in one of the classrooms. As I entered this class he handed me a note that said, "Will you interview me?" Since then we have been close friends and filmed several interviews together. This is our latest video together, filmed just weeks ago. | Special Books by Special Kids
110.6K viewsJun 6, 2024
FacebookSpecial Books by Special Kids
9:24
Only 93 People In The World Have My Condition | BORN DIFFERENT
19 viewsOct 19, 2023
DailymotionTruly
5:12
Ashley's Life with Nager Syndrome P2 #interview #truestories #motivation #dalyvlog #viral #fyp #foryou #dalivlog
7.4K viewsAug 28, 2023
TikToktruestories.doc
5:00
Jeff's Journey (Nager Syndrome) - Part 1#interview #truestories #motivation #dalyvlog #viral #fyp #foryou #dalivlog
4.1K viewsFeb 28, 2024
TikToktruestories.doc
10:28
Checkin' in on Jeff (The "How Are You?" Series)
389.8K viewsMay 21, 2020
YouTubeSpecial Books by Special Kids
9:21
Jeff is diagnosed with Nager syndrome. He hopes that instead of staring you take time to talk to him about "sports, animals, and Disney". | Special Books by Special Kids
823.6K viewsAug 30, 2021
FacebookSpecial Books by Special Kids
5:10
What is Crigler-Najjar Syndrome? - Symptoms, Treatment, and Prognosis, Danielle Zamalin, MD
2.5K viewsMar 20, 2024
YouTubeAmerican Liver Foundation
0:07
Since I have gotten so many new friends joining, I figured I’d reintroduce myself… ✍🏼 👋🏼 Hi! I’m Ashley, and I have Nager Syndrome, an extremely rare craniofacial condition that affects the face, arms, and hands. 🌵 I’m residing in Phoenix, AZ with my amazing partner, Matt, and our beautiful pitbull, Harper. 🐾 💃🏽 I am a former Turn Up instructor who will always love Turn Up Dance Fitness, but it wasn’t aligning with me anymore. Now, I’m proud to be a Level 2 MixxedFit instructor and active
71 views3 months ago
TikTokdisabledanddope
13:59
Sweet Sophia (Never Underestimate Her)
40.9M viewsSep 6, 2018
YouTubeSpecial Books by Special Kids
1:53
Lauren's Light: Celebrating Nager Syndrome Awareness
12K viewsFeb 22, 2022
TikTokspecialboksbyspecialkids
3:27
Jeff is diagnosed with Nager syndrome. He hopes that instead of staring you take the time to talk to him about "sports, animals and Disney." | Special Books by Special Kids
3.3M viewsMay 16, 2019
FacebookSpecial Books by Special Kids
3:15
Why I Need Help Putting On A Bra Ashley has to live with Nager syndrome, an incredibly rare craniofacial condition that affects the development of the face, hands, and arms. Yet that did not stop her from living her life to the fullest and finding meaning through dance! | seen.tv
13.6K viewsDec 6, 2023
Facebookseen.tv
0:34
Nager acrofacial dysostosis (Medical Condition)
283 viewsMay 20, 2015
YouTubeMedical Condition Information
2:22
Meet #myFaceisBeautiful star, Anibel Bruce. Anibel was born with Nager Syndrome and is an aspiring interior designer. She's been a tireless advocate for the craniofacial community and exemplifies the very heart and courage that this campaign is all about. We're so grateful to have been a part of Anibel's journey, and we're so excited to see where that journey takes her next! The world needs to know about the wonderful person we’ve had the pleasure of knowing all these years, so please help us sh
396 viewsJul 28, 2024
FacebookMyFace
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